Where We Are

have enrolled in the REN

Research Project Summary

The Rare Epilepsy Network (REN) PPRN is an initiative created by and for patients with catastrophic rare epilepsies. The REN's goal is to build a patient-centered and -driven database designed to provide the patients and their families an opportunity to participate in research that will improve the lives and quality of care for people with rare epilepsies. 

Our PPRN is led by the Epilepsy Foundation (EF), a patient advocacy organization dedicated to the welfare of the almost 3 million people with epilepsy living in the United States.