Pre-enrollment Screening Questions
Consent Forms
Study Registration

Enroll in the REN Study


Enrollment in the Rare Epilepsy Network (REN) Study is easy. Before you begin, please learn about the study and who is eligible to participate.

To enroll, we will ask you some initial questions that will verify your eligibilty and help us to select the correct forms. These forms include details about REN, allow you to choose how you would like to participate, and get your consent to join this study. Finally, we will ask you for information needed to enroll, create a web site account, and contact you during this research.

If you have any questions about the study or your participation, please email us at or call the REN at (301) 918-3728 or toll free number at (888) 886-3745 (toll free in the United States) and someone will get back to you during normal business hours Eastern Standard Time. Please leave a message if busy. Voice mails can be left at any time and will be returned as soon as possible.

Items with an asterick (*) are required for enrollment. To create a study ID to uniquely identify the person with a rare Epilepsy, we will ask for their:
  • full name *
  • date of birth *
  • place of birth
  • gender
To create a web site account to participate in study activities, we will ask for:
  • an email address *
  • a Password *
To stay in touch with you during the study, we will ask for your:
  • address
  • phone number
Your privacy is important to us. Learn how we protect your information.